FEBRUARY 2015

1 February 2015 – Korkor Marcel was feeling bored at home, so he carried you around the house and made you do funny little tricks!! He made a blanket cave and brought you into the cave:) It was darrrrrk, and  scaaaryyyyy, so Korkor Marcel carried you out! Who likes living in darkness anyway?

2 February 2015 – Your nose started bleeding and your stool colour changed. You were hospitalised and you needed a blood transfusion. At this point, your bilirubin level was at 650, and your hemoglobin level dropped from 90 to 77. The doctors said that you have problems absorbing Mr Vitamin K, so your blood could not clot.

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3 February 2015 – This was you at your first blood transfusion. It took 3.5 hours!! That is the time it takes for you to drink milk 2 times:)

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Drip. drip. drip.

Mommy was scared and worried for you, but you came out of it happier!

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Mommy said you were like a happy vampire!! Heeheehee. You would be the cutest non-venomous vampire…

4 February 2015 – Doctors said that you had to drink formula milk with medium chain triglycerides, instead of mommy’s milk!! You did not like it very much as you cried:( MOMMY’S DA BEST!

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9 February 2015 – Jiejie Myra was reading a book on kidney transplants to you. Your expression made it seem as if you knew you would experience a transplant eventually…:(

Oh, yes. A transplant is like… an exchange! Its like when you give mommy back your empty milk bottle because it is no longer useful to you…and you want a new, full one that is useful!! You would have to exchange old Mr Liver away for new Mr Liver!

Mommy said you were growing well anyway:) We thank God for that!

12 February 2015 – You woke up with an eye infection, blocked nose and cough, but throughout the day, you got better and was cheerful!! Good baby!

Your Bilirubin level increased progressively, and everyone got really worried as it climbed from to 720 on 13 February. The doctors suspected that you had either PFIC, or Alagille Syndrome, which you were eventually diagnosed with. Your little body could not absorb vitamins such as vitamin K, A, D and E, and that made it difficult for your blood to clot.

It was confirmed that you needed a liver transplant, and Korkor Mark said he would definitely give you part of his, without hesitation, even if he has to retain in J2! He loves you so so much baby Max!

Mommy said you were very alert and cheerful today!

17 February 2015 – Mommy made a trip to Melbourne with you to see the gastro team to plan for your liver transplant.

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This was your hospital bed in the Royal Melbourne Hospital!! you arrived in Melbourne on a speedy plane.

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This was where mommy stayed with you!

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17 February 2015 – Mommy said you didn’t like the hospital as you were cranky and did not want to be put down. You only slept for about 20 minutes, hugging Poppy the Pillow!

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STOPPIT. STOP bringing me to hospitals!!

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This is what a cranky baby with hospital phobia looks like. Everything was arranged for you at no cost. Thank God:)!

You looked upset because the nurses poked your hands three times to find your vein. Mommy called you her “poor fat boy”.

It was a very depressing and difficult period of time for mommy and you. It was your first Chinese New Year, and you had to spend it in hospital:(

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24 February 2014 – You had to be poked for the nurses to set up an IV plug for you. A soft board was placed at your leg to protect you from kicking the needle off, or else your little leg would bleed again.

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They poked your little hand so many times 😥 but you are a brave, brave Max!!

You came back from Melbourne and started on solids!!

It was your first time being fed with oats and you obviously did not like it. Mmmm mommy’s da best.

Korkor Matthew cheering you on and telling you that oats are yummy! Everyone was watching you eat:)

Daddy was playing with you and you were smiling at him so happily!

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25 February 2015 – Your belly was slightly bloated as there was water in it:(

The cardio anesthetist said that your left heart artery had some tightness  which might affect your liver transplant… A heart is sized like your little fist, except it goes LUBDUB- LUBDUB! and helps you to stay alive!:D

27 February 2015 – You were admitted to the hospital in Adelaide and put in ICU as you could not pee. You had to fast 😦 That meant no milk…Awww man… 😥

The doctors decided to put a PICC line into you, to make it easier for blood to be drawn from your little body.

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28 February 2015 – This was you before the PICC line was inserted into your body. Still lookin’ handsome!!!

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